Henry (2nd son of Audra Notgrass) in hospital

[0 kids n not countin]

I really hope her son Henry is okay and doesn't have whatever illness Avery had. :cry: I feel so bad for Audra. I assume there must be something genetic that they pass on to their offspring?

Unexpected: An Update on Henry and a Pouring out of my Heart

Sunday morning Henry woke up with a fever. No big deal. By Tuesday, however, his fever had risen higher and we decided to take him to the doctor. As recommended by our specialist at Vanderbilt in Nashville, Henry had a blood test to check his cell levels. They were just below the "safe" range, so we took him to Children's Hospital here in St. Louis to have him monitored.

We were hopeful that his cell levels would rise but they have not. He has no other symptoms and his other numbers look good, but still...

Now we are sitting in the hospital, waiting. Waiting for his neutrophil levels to rise; waiting for the signs that what is going on is a virus. That next week everything is normal and we will be on our way home.

Waiting to wake up from a potential nightmare.

The last time we were in the hospital we came home with empty arms. My soul is crushed as my feelings tell me this is what is going to happen again, but my mind tells me to wait, wait and see. Henry is in good hands and I feel confident that the doctors here are doing their utmost to help Henry.

But I am still scared.

Frightened.

Confused.

I have had so much pain in the last four years my very being recoils from enduring any more.

This is not how it's supposed to be.

But this is the way it is.

I'm breathing.

I am taking one step at a time.

I am clinging to the fact that Henry is not sick the way Avery was.

He is eating, sleeping, producing plenty of diapers, playing with toys, getting in to everything, hamming it up for the medical personal (they are in love with him, but then again, who isn't?), and being generally cute and trouble, all at the same time.

I want this life.

I want to be a mommy.

I want to be Henry's mommy.

I want to take him home and love on him there.

I want him.

Thoughts go through my head, some good, some dark. I know that Jesus knows what is going on and that comforts me. But I am having a hard time being patient while Jesus works through this situation.

Pray for Henry, and if you are not a praying person, think of him and send him warm, positive thoughts. Pray that we can keep him, that we can all go home and be together, us three and the kitties.

Thank you.

[Bubblewand]

Oh no. I can't even imagine how terrified they must be. I hope he pulls through.

[Milly-Molly-Mandy]

So sad. Do we have any idea what the children have?

[RealityTVRN]

I'm confused. Infection during chemo?

[RealityTVRN]

Regardless...I hope he does well, and she doesn't lose a second child. :( How heartbreaking.

Who is Audra?

[Triplet3]

Regardless...I hope he does well, and she doesn't lose a second child. :( How heartbreaking.

Who is Audra?

The Notgrasses are good friends with Rebecca K's family and feature on her blog pretty frequently.

[dairyfreelife]

johnandaudra.notgrass.com/

How sad.

First daughter dies in the womb from Turners, second son dies from hemophagocytic lymphohistiocytosis, and then she miscarries and now her second son is taken sick. That's really, really sad. Losing one child is more than enough for anyone. I sincerely hope Henry will be okay. :cry:

[Sobeknofret]

johnandaudra.notgrass.com/

How sad.

First daughter dies in the womb from Turners, second son dies from hemophagocytic lymphohistiocytosis, and then she miscarries and now her second son is taken sick. That's really, really sad. Losing one child is more than enough for anyone. I sincerely hope Henry will be okay. :cry:

OMG, that poor woman. What horrible things she must be imagining right now :cry: I'll be thinking of her and wee Henry.

[Triplet3]

The post about Henry is on Audra's blog, mylittlesockmonkeys.blogspot.co.uk/

[RealityTVRN]

Thanks for the explanation of who she is. :)

What a horrible list of tragedies.

I wonder if the parents are too closely related? Isn't that a primary cause of HLH?

[punkiepie]

Is she a fundie? Her blog seemed more fundie-lite to me, but I just skimmed it. I can't imagine what they are going through, it must be so horrible. I hope he pulls through!

[Jana814]

I feel so bad for them. I hope he will be OK!! The couple was on Our America w/ Lisa Ling, talking about they did the courtship thing.

[WonderingInWA]

I think Audra's dad is the pastor at Rebecca K's church. When Audra got married, she moved away for awhile, and then they ended up moving back to Rebecca's town maybe a year ago. I remember Rebecca posted photos of her family helping Audra and her husband move into their new home. I don't remember if that was before or after Avery's passing and Henry's birth.

Her story is really so very sad. She lost Avery and then had Henry a month later. I just hope he pulls through and doesn't have some kind of genetic disorder. But obviously, she is terrified with "what if's".