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Carlin & Evan 11: Scary Health Situation


samurai_sarah

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4 hours ago, SoSoNosy said:

I have a cousin who started fainting every time she stood up quickly when she was a junior in high school.  After multiple tests, the diagnosis was POTS.  Two other people I know have been diagnosed with that as adults.  

this is what i keep thinking

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23 minutes ago, Nikedagain? said:

this is what i keep thinking

If It is POTS (pure speculation), is it the kind of thing that she shouldn't have kids if she has it? Or they can treat it and move on? I don't know much about POTS. 

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The cousin who was diagnosed early is still in college, so I don't know how they will approach it.  The other two already had their children before diagnosis.  So that doesn't help a bit.

 

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8 hours ago, SassyPants said:

Per IG…the Stews are out on birthday outing for Evan. They visited the Tesla dealership. I know they are not buying a car, but just having a fun outing. Am I the only one who finds this odd? Who would drag 2 little kids to a car dealership for shits and giggles? Sounds like torture to me.

I agree, I also think it's a waste of the dealership and salesman time when they have no intention of buying. Evan got to ride in one in Vegas. And Carlin could have used that app to rent one for the day like Katie did for Travis. But no let's go tour a car dealership.

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2 minutes ago, raayx01 said:

I agree, I also think it's a waste of the dealership and salesman time when they have no intention of buying. Evan got to ride in one in Vegas. And Carlin could have used that app to rent one for the day like Katie did for Travis. But no let's go tour a car dealership.

I wonder what the salesman thought of it, he must have realised quite soon they did not have the intention to buy.

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I’m interested to see if Carlin attends the out-of-town bridal shower for the latest soon-to-be SIL that Josie mentioned today on IG. Any guesses?

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On 8/22/2022 at 1:30 PM, Smash! said:

Exactly. Saying „it’s all in your head“ is also an excuse for some medical professionals to  avoid admitting they don‘t know what‘s going on or to investigate further (even refer to other specialists).

I‘ve been dealing with chronic pain for a while now and my primary care physician told me it‘s not tissue damage and psychogenic. It took me two appointments, the 2nd one accompanied by my boyfriend to convince  my physician to refer me to an orthopedic clinic. The specialists there finally found the root cause of my pain. Funny enough, I learned there that whether the sensation of pain is felt is solely decided by the brain based on many factors, regardless of how badly the tissue is damaged or how much a muscle is sore. So yes, pain is so to speak psychogenic but nonetheless most often has a root cause.

Everyone deserves understanding medical professionals who will investigate a problem until the patient knows what she/he is dealing with. This shouldn’t be a battle but it‘s very often one.

Yes, all perceptual information--whether entering via perceptual organs or from within the body--is synthesized by the brain. Gotta have that brain for pain or pleasure. There are ways people can learn to disconnect from their body (deep relaxation, trance states) and thus minimize the experience of pain. But it's not practical to maintain that type of state for very long and it can be dangerous because sensing pain has important survival functions. It makes sense to treat the root cause whenever possible and keep the brain/body integrated.

There is pretty clear evidence that pretty much all medical conditions have a psychological and social  component. Even a person in a traumatic car accident---things like social support, pre-accident psychological functioning, addiction, stress---will directly impact the recovery. Cancer patients who are satisfied with their friendships and intimate relationships live longer. 

I would say most seizure and similar neurological disorders have a connection to stress. What that stress may be or to what degree the stress may trigger---that's what varies between people. Which is why I think a more honest and productive conversation with patients is:

We are not sure exactly what your disorder is. Usually the type of symptoms you are experiencing are impacted by stress. While we continue to search for the appropriate diagnosis, we would like you to speak with this member of our treatment team who will help you try to identify and manage your stress triggers. Our goal is to help you be healthy and there many puzzle pieces that have to be assembled in order to figure out solutions. Your input in this process is important and we appreciate your willingness to communicate with us.

Integrate it all into the treatment and let the patients come to their own conclusions about what works and what doesn't.

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51 minutes ago, noseybutt said:

Yes, all perceptual information--whether entering via perceptual organs or from within the body--is synthesized by the brain. Gotta have that brain for pain or pleasure. There are ways people can learn to disconnect from their body (deep relaxation, trance states) and thus minimize the experience of pain. But it's not practical to maintain that type of state for very long and it can be dangerous because sensing pain has important survival functions. It makes sense to treat the root cause whenever possible and keep the brain/body integrated.

There is pretty clear evidence that pretty much all medical conditions have a psychological and social  component. Even a person in a traumatic car accident---things like social support, pre-accident psychological functioning, addiction, stress---will directly impact the recovery. Cancer patients who are satisfied with their friendships and intimate relationships live longer. 

I would say most seizure and similar neurological disorders have a connection to stress. What that stress may be or to what degree the stress may trigger---that's what varies between people. Which is why I think a more honest and productive conversation with patients is:

We are not sure exactly what your disorder is. Usually the type of symptoms you are experiencing are impacted by stress. While we continue to search for the appropriate diagnosis, we would like you to speak with this member of our treatment team who will help you try to identify and manage your stress triggers. Our goal is to help you be healthy and there many puzzle pieces that have to be assembled in order to figure out solutions. Your input in this process is important and we appreciate your willingness to communicate with us.

Integrate it all into the treatment and let the patients come to their own conclusions about what works and what doesn't.

Yes, to this message and approach. I do wonder how this conversation and message from a HCP would be received from people whose main coping mechanism and support system are all Jesus all of the time? Would their type/mode of faith be a help or a hindrance to successful treatment?

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4 hours ago, SassyPants said:

Yes, to this message and approach. I do wonder how this conversation and message from a HCP would be received from people whose main coping mechanism and support system are all Jesus all of the time? Would their type/mode of faith be a help or a hindrance to successful treatment?

I would be curious to hear responses from various HCPs.

I think the "all Jesus all the time" folk do understand the importance of healthy diet, sleep, rest, etc. I don't have a problem using the language--for example, taking about the need for a sabbath.

The harder part is trust. People with fundamentalist leanings often distrust the medical field, and the pandemic has made that distrust even worse. They tend to dislike mental health professionals (the licensed kind). So the first challenge is building rapport. The second big challenge is that their lack of trust often extends to their own emotions and experiences. They want to constantly tamp down their emotions and cognitively reframe every detail of their experience to fit the narrative.
 

It takes a lot of neutral or culturally appropriate language and creativity. (How to teach someone resistant to what you are teaching?)

But again. Conversion disorders are challenging to treat in non-religious people as well. I am guessing similar trust issues may be at play but have different origins. 

 

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14 hours ago, CarrotCake said:

I wonder what the salesman thought of it, he must have realised quite soon they did not have the intention to buy.

Where I am from, they would be called "tire kickers". The sales folks I know would be demanding pay if they were to be filmed for putting up with tire kicking.

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17 hours ago, raayx01 said:

I agree, I also think it's a waste of the dealership and salesman time when they have no intention of buying. Evan got to ride in one in Vegas. And Carlin could have used that app to rent one for the day like Katie did for Travis. But no let's go tour a car dealership.

What a wanky thing to do. When I am just browsing I make sure I let the sales people know, I do not want them wasting any time on me. I would only accept their time if they said it was ok they were not busy and happy to do it and as soon as a possible paying customer came in I would tell them to high tail it for their commission. 

I remember once with an ex, we walked past a super exy car selling place like porche or something. He wanted to go in and I was mortified because I knew we were not buying. He was not fazed (they were not busy) and the car salesman was happy to have another car lover to chat to and was happy to show us around and look at the cars. My ex was an arse  but he was a well mannered arse, I do not think he would have gone in if they were busy though. 

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10 hours ago, SassyPants said:

I’m interested to see if Carlin attends the out-of-town bridal shower for the latest soon-to-be SIL that Josie mentioned today on IG. Any guesses?

It’s the bachelorette trip for the wedding party and I don’t think Carlin is in the wedding. Josie and Willow are, and two of the younger sisters that aren’t Callie are. I remembered…. Addie & Ellie. 

Edited by Tdoc72
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13 hours ago, Tdoc72 said:

It’s the bachelorette trip for the wedding party and I don’t think Carlin is in the wedding. Josie and Willow are, and two of the younger sisters that aren’t Callie are. I remembered…. Addie & Ellie. 

Per Carlin’s IG, she is home this weekend and her “best friend and the friend’s children” are coming for a visit. She did not identify the friend by name. She also had a Neurology appointment today and was running errands. I guess she is not attending the festivities. Also, Josie had previously mentioned that her sister would be babysitting the girls during the day(s) while she was gone and Kelton was at work. I’m guessing that means Willow is not traveling as part of the wedding party. I’ve never heard of a BT for only the wedding party-

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3 hours ago, SassyPants said:

Per Carlin’s IG, she is home this weekend and her “best friend and the friend’s children” are coming for a visit. She did not identify the friend by name. She also had a Neurology appointment today and was running errands. I guess she is not attending the festivities. Also, Josie had previously mentioned that her sister would be babysitting the girls during the day(s) while she was gone and Kelton was at work. I’m guessing that means Willow is not traveling as part of the wedding party. I’ve never heard of a BT for only the wedding party-

Katie bachelotte trip was also just the wedding party, wich meant Ellie was left home while Addallee attended.

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The bachelorette parties I attended in the past (haven’t been to one in 8 years) were always just a bunch of friends and close female family members of the bride or groom. It wasn’t just for the wedding party. 

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4 hours ago, SassyPants said:

Per Carlin’s IG, she is home this weekend and her “best friend and the friend’s children” are coming for a visit. She did not identify the friend by name. 

Joy Duggar Forsyth?

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Maybe the trip to the Tesla dealership was in hopes of getting a discount on a future purchase (or "wanna give us a free car?") based on all the Instagram publicity they generate?  

Carlin has a long-standing BFFriendship with Joy D. Forsyth, so that's my guess on who is visiting with their kids this weekend.

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In a later story with a checklist she mentions getting the guestroom ready for Joy

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21 hours ago, JermajestyDuggar said:

The bachelorette parties I attended in the past (haven’t been to one in 8 years) were always just a bunch of friends and close female family members of the bride or groom. It wasn’t just for the wedding party. 

This was mine. It my was my 5 bridesmaids and then 4 other friends who weren't in the wedding party but were close. 

On 8/25/2022 at 11:50 AM, SassyPants said:

Per Carlin’s IG, she is home this weekend and her “best friend and the friend’s children” are coming for a visit. She did not identify the friend by name. 

Generally when she says "my best friend" she means Joy (and later she posted a checklist that referenced Joy by name). Tiffany mentioned Lawson is in Arkansas training for MediScam, so Austin is likely with him and Joy decided to take the opportunity to visit Carlin.

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This week’s CarVan YouTube video confirmed/revealed that due to her health issues, his FMLA is exhausted and the company he was working for had to fire him.  He’s now working for Carlin at the boutique.

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Last vlog summary: She had another serious episode. She was in the street but Evan was able to catch her so she didnt fall.

He recorded the episode to show to their doctor but also decided to put it in the video. It was sad to see, she had a lot of convulsions and Evan mentioned it has been the episode with the worst convulsions so far.

Then they had a follow up with their doctor, her blood pressure and iron were low so she may be getting some blood infusions again. The doctor told them they will do the 5 days hospital stay EEG in october. If they dont find a diagnosis then they will refer her to the Mayo clinic.

They also showed the visit to the Tesla car leadership and they just looked at the cars from the outside.

About his job he was on not-paid family leave but already ended and they would not extend it or save his job anymore. They decided for him not to go back because they would need to hire a person to take care of the kids and another to take care of Carlin (she said when she has the episodes she usually cant do anything for the next 2 days) and it wouldnt make sense finantially. Luckily BSB was able to hire him. They joked a bit that now Carlin is his boss.

 

Edited by llucie
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It really says a lot about the extended Bates family that they can’t be bothered to help enough at least in the aftermath of Carlin’s episodes to allow Evan to go back to work. 

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I am posting a picture from their new video of Carlin having a seizure in the spoiler below. I feel bad that Layla is there but I also feel bad for Carlin and Evan since they can’t help that. I think Evan did a good job of remaining calm in front of Layla to show her it was ok. Layla was cute and just said, “It’s going to rain”
 

Spoiler

C798C586-4942-46F2-BE7E-6E7EAF4DABAF.thumb.jpeg.2e682ca3fc009653ca1f57cf8fc2868d.jpeg

 

Edited by luv2laugh
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9 minutes ago, Dominionatrix said:

It really says a lot about the extended Bates family that they can’t be bothered to help enough at least in the aftermath of Carlin’s episodes to allow Evan to go back to work. 

The thing is who would be able to help? Whitney has four kids and is likely doing extra at the boutique. Erin has 5 kids (even if she and Carlin were on good terms, which they don't appear to be). Tori has 4 kids, including a newborn. Josie has two kids and her own business. Lawson, Nathan, Alyssa Katie and Jackson all live far away. Trace and Warden seem to work full time. 

So you have Kelly, who sucks at emergancies. Addee and Ellie who are teenagers and should not have to take on that responsibility. Or Michael, who seems to be actively going through fertility treatments and has her own stuff to deal with. 

Evan had his certification. He says he will keep paying in and keeping his standing active. They can apparently use him at the boutique and can afford to make this move and I can see it making the most sense for them at least until they have answers.

 

Edited by CanadianMamam
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