I hate cancer! Its like watching a shitty movie where you already know the end. He's lost more weight, is more unsteady on his feet and the seizures are more frequent. LIFE SUCKS

Dyed my hair - went jinger! Wait, no, ginger...

It’s been two weeks and only have essentials unpacked.  This weekend need to get things more situated but tbh Idk where to start.  
I have to set up my bedroom (mini-me has been away since so I’ve been crashing in her room) and find my kitchen stuff.  And lack of any decor is starting to bother me.
i think I’m going to treat every box like the LHOP Christmas barrel.  Take out and use the things we need/love/are excited to see again and everything else stays neatly in boxes.
This will be me tonight if I can find the rest of my kitchen stuff.
 

So apparently I'm part of a club I have no recollection of joining. And I only just noticed.

My husband didn’t get the job. That means he still has a terrible commute to a job he hates and we have no health insurance. Trying to look for the positives and be thankful he has a job, but it’s tough right now. 

It only took a day and a half of limited access to remind me of just how much our modern world relies on the internet.

You guys. I'm just scared right now. I get scared. My son is now 2 years away from graduating and also being 18.  Legal age and shit will get more complicated at 18. He has a very rare progressive neurodegenerative muscular disorder.  
The norm is to worry as our children get closer and closer to life after HS.  But, he is limited in his walking and it will get worse.  I'm not being pessimistic, I'm being honest. He shows me over and over how capable he is. I'm so proud of him. He is my hero, my inspiration.  As is my daughter who thankfully does not have this issue.  Kids are amazing in their ability to adapt. 
I'm just scared. Worried what life will be like when his many friends, especially his core group, goes off to live their lives. I imagine he will attend some sort of college. It's what he wants and he's smart too. Like, really smart. But, his body fails him. 
Please let one of these trials bear real fruit. To halt and regain mobility.  I need to remind myself that right now is a good time.  Two whole years left in HS. He's doing well. We just installed grab bars in the bathroom.  He directed us where they would be needed! I love how he advocates for himself! I love how we don't push him hard or force things. We inform him and it's working.  Idk. Sometimes I get so scared. As I see graduations happening this time of year. Makes me worry. 
I needed to say that. I can't say that outloud.  I can to like, 2 people.  But, they are unavailable right now. 
 

Tonight my mom forgot the names of two of her granddaughters.  My daughter and my sister's youngest. Growing old SUCKS. I'm just glad they were not there to hear it.

Finally (!!!!) getting used to having a long arm cast.  Only another 3 weeks.  Then, hopefully, a removable splint, and lots and lots of intensive physiotherapy. 

Ch.2: Rise Up
The ground attack has launched.
I ordered an abundance of chemicals yesterday. One thing about no pets is not worrying about chemicals.